Patient-Centric Regulatory Affairs & Policy
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Credible Science – How Can We Help Patients Find Good Information?

While attending a session about crowd-sourcing cures for rare disease, I was struck by the need for credible scientific information accessible by patients. But the conversation also raised questions for me about how we can get patients to trust science again and generate credible information from anecdotal patient experience. There has to be a better way for patients to get the information they need to thrive.

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Oh, but my darling...what if you fly?

After being fired, sharing my situation so publicly made me vulnerable to failure.  But it also opened me up to opportunity. When we acknowledge the possibility that there might be more for us out there, we invite opportunity to come knocking.  We will always be able to name the ways that we might fail.  But we really find our freedom when we discover all the ways we might fly.

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